Wednesday, March 28, 2018

A Diaversary to Celebrate!




Two years ago today, our lives forever changed.

My feelings leading up to this day, and afterwards, are emotionally conflicting.

I feel immeasurable sadness when I think about the trauma Kinsley, and our family, experienced after learning she had type one diabetes.   Those initial months were like a battlefield.  I felt like we were at war, literally.  It was so hard for the Kinster.  And, the grief you feel when learning your child will live with a chronic and potentially life-threatening disease for the rest of their life still takes my breath away.  It hurts, not gonna lie. And, please, don't tell me that I should be relieved that she doesn't have cancer!

But, on the flip side, I feel immeasurable gratitude.  Kinsley's A1C was higher than the highest detectable limit at Children's Hospital (they measure up to 14) and I have since learned that Kinsley's blood sugar was higher than some who never made it out of the hospital emergency room alive.  The Lord spared her life and for that, I am forever grateful.  Every time I hear of another loss in our community, I give thanks to the Lord for Kinsley and her health and well-being.  

Do you see why these emotions feel so conflicting?

Tonight we celebrated her second diaversary with dinner at Kinsley's favorite restaurant:  Teresa's Mexican Restaurant in Lakeville.  Then, we came home to what has now become our traditional diaversary cake.  Kaitlin was so cute and couldn't understand why we didn't sing happy birthday afterwards!  :)

We celebrate this special day because Kinsley's is a strong and courageous type one warrior.  She endures more in a month than some do in an entire lifetime.  She is poked, prodded, and pricked daily.  And, she is six!  She is a rockstar and she inspires me.

We remain hopeful for a cure, but we grow more intent for the medical community to develop advancements that minimize highs and lows and protects her from some of the long-term medical complications we hear all too much about.  There is a lot of amazing things out there that just need to be approved by the FDA and/or manufactured.  Just this week, the Dexcom 6 came out and rumor has it that is will work with T-Slim AND Omnipod to provide a closed-loop insulin delivery system.

We thank you for supporting our family.  After all the fanfare is over and the initial shock of this diagnosis wears off, there remains a family and a child fighting for life every day.  Your love, concern, and prayers mean the world to us.

Happy Diaversary, Kinsley!

Kinsley posing and Kaitlin ready to dig in (what a second, did she already dig in a bit)?



Love the Munsons!




Tuesday, March 13, 2018

Walking a Fine Line


Just when you think you've sorta figured out T1, you are thrown a curve ball that keeps you on your toes and wide awake at night.

Lately, I have felt like we are living in war zone...literally.  We've been up more than we were with a newborn baby and we are exhausted.  We love our Dexcom and it has saved Kinsley's life more than once, but its existence comes at a cost.

Kinsley's insulin needs have actually diminished as of late (more about that later) which means that we are battling lows a lot.  On Sunday night, Kinsley's blood sugar was dangerously low and she was swaying back and forth like a drunk.  It was 40!  

Thankfully, we use a Dexcom that alerts us of these lows but it has been beeping all....the....freakin'......time!  (Every time I hear a loud noise, I jolt!)  And, each time we are alerted, we are in panic mode (in our minds but try to appear calm and collected in front of the Kinster) as we try to increase her blood sugar to a more manageable number. 

So, while it wasn't along ago we increased her basal rates due to highs from a crazy growth spurt, we are now decreasing those basal rates to regain homeostasis - whatever homeostasis means for a type one diabetic!  It is a fine line that has us in quite a conundrum. 

Type one diabetes is a cruel disease.  It follows no rhyme or reason and it never plays nice.  While I have always been an unusually anxious person, walking this fine line to adequately balance her insulin needs has thrown me through a mental tailspin.  It is endlessly frustrating.

But, in spite of the difficulties, we keep on keeping on.  We have a battle to win and a little girl to protect.

Until a cure is found, we soldier on.