Tuesday, March 13, 2018

Walking a Fine Line


Just when you think you've sorta figured out T1, you are thrown a curve ball that keeps you on your toes and wide awake at night.

Lately, I have felt like we are living in war zone...literally.  We've been up more than we were with a newborn baby and we are exhausted.  We love our Dexcom and it has saved Kinsley's life more than once, but its existence comes at a cost.

Kinsley's insulin needs have actually diminished as of late (more about that later) which means that we are battling lows a lot.  On Sunday night, Kinsley's blood sugar was dangerously low and she was swaying back and forth like a drunk.  It was 40!  

Thankfully, we use a Dexcom that alerts us of these lows but it has been beeping all....the....freakin'......time!  (Every time I hear a loud noise, I jolt!)  And, each time we are alerted, we are in panic mode (in our minds but try to appear calm and collected in front of the Kinster) as we try to increase her blood sugar to a more manageable number. 

So, while it wasn't along ago we increased her basal rates due to highs from a crazy growth spurt, we are now decreasing those basal rates to regain homeostasis - whatever homeostasis means for a type one diabetic!  It is a fine line that has us in quite a conundrum. 

Type one diabetes is a cruel disease.  It follows no rhyme or reason and it never plays nice.  While I have always been an unusually anxious person, walking this fine line to adequately balance her insulin needs has thrown me through a mental tailspin.  It is endlessly frustrating.

But, in spite of the difficulties, we keep on keeping on.  We have a battle to win and a little girl to protect.

Until a cure is found, we soldier on.

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